Deafness-cum-blindness is considered to be a low incidence
disability but poses a impairment with specific effects on the lives of
individuals.
As per Sense International India there are more than 4,85,000 deafblind
people in India. The impact of a dual sensory loss is significantly
different from a single loss as the individual’s ability to compensate
with the remaining sense is reduced.
In April 2009, Nav Bharat Jagriti Kendra started a program for
deafblind children with support of Sense International (India) at
Hazaribagh. It covers 28 villages or urban pockets of Hazaribagh. A
baseline survey was conducted by trained field staff and special
educators to categorise the deafblind children as mild, moderate and
profound.
Later, through clinical assessment proportion of hearing/vision or
other motor-sensory loss was estimated. Initially the program started
with 18 deafblind that has reached up to 42 children now.
A Resource Center was established in Hazaribagh town to make these
children self dependent despite limitations and to ensure their school
enrollment. This center is enriched with a number of aids-appliances and
teaching-learning materials. NBJK provided related services through
home based and center based set up. Both offer a number of activities
for deafblind children to facilitate them towards self sustainability
and to involve their parents also in this process. Like ADL or activity
of daily living which includes toileting, brushing, eating, drinking,
bathing, dressing etc.
FRW or functional reading & writing comprise fine and gross motor
development, speech therapy, sign language and Braille. Orientation
& mobility skills include developing sensory awareness,
directionality, spatial concepts and independent movement with other
relevant activities.
Physiotherapy to such children or its training to parents enables them
to practice and perform better in all respect. Focus is given upon
receptive and expressive communication, social interactions, and
cognitive use of sensory abilities. Leisure & recreation,
pre-academics, literacy, pre-vocational /job skills, behaviour
modification, sex education and various independent living skills are
other areas of activities for identified deafblind children and their
parents.
The programme has ensured certification and pension for 34 and school
enrollment for 14 such children. NBJK organizes outings for these
children and their parents. Their families have formed a network which
meets quarterly to share experience and discuss about further progress
of their children.
This programme has shown the way to consider deafblind children distinctively with care and hope.
Source : The Pioneer ( 9th Feb 2013 )
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