Picture for representational purposes only.
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Globally, one in every 10 persons is disabled. Which means that in
our world, 500-650 million people are disabled. By 2015, this figure is
expected to rise to around 800 million, making people with disabilities
the world’s largest minority group.
The disabled
experience life through many obstacles — physical, social and emotional.
Often they are ignored, pitied, patronised, objectified and even
fetishised.
Societies respond to people with
impairments differently. In the past, the most common model was the
charitable one where the disabled were recipients of pity and largesse.
In recent decades, there has been a global shift to defining disability
as a human rights subject.
As such, one can choose
to see disability as an individualised medical condition needing a
medical solution. In this paradigm, appropriate assistance is understood
either as rehabilitation efforts to enable the individual to overcome
the effects of the disability, or medical efforts to find a cure.
Juxtaposed
with this is the social model under which disability is redefined as a
social construct, a type of multi-faceted societal oppression.
Here being “disabled” depends upon the deviation from society’s construction of corporeal normality.
Both
models are incomplete in themselves. The medical model considers
clinical measuring, questioning, numbering and classifying to be the
only yardsticks of disability.
However, this excludes the functions aspired to by the individual. It is alienating rather than supportive.
The
social model has also been criticised, including by the disabled
community, for not taking into account the physical body in its analysis
of disabling factors. It has been depicted as too unbending in its
concentration on structural societal factors and as “disregarding the
cultural and experiential aspects” of a disabled person.
The
social model fails to recognise the physical and emotional problems
that are associated with impairment, disabling factors regardless of
societal responses. Still, the social model perspective, with its
separation of impairment and disability, has yielded many political
benefits and been a starting point for research, activism and
discussion.
The World Health Organisation’s
International Classification of Functioning, Disability and Health
(ICF) defines disability as an umbrella term for impairments, activity
limitations and participation restrictions.
ICF
believes disability is always an interaction between features of the
person and features of the overall context in which the person lives.
Some aspects of disability are almost entirely internal to the person,
while other aspects are almost entirely external. In other words, both
medical and social responses are appropriate; we cannot wholly reject
either kind of intervention.
What is urgently
needed is the development of an integrated model that will empower
people with disabilities, giving them full and equal rights alongside
their fellow citizens.
Disability studies can
play a significant role in bridging the gap between the medical and
social models of disabilities and building a functional and sustainable
integrated model.
But the scope of disability
studies needs to be widened. Disability studies should be
interdisciplinary in approach and should include the medical fraternity,
social sector specialists, psychologists, economists, business and
spiritual leaders, educationists and many others too.
In
India, one of the major achievements of the disabled rights community
was to incorporate the essence of the United Nations General Assembly
passed the Convention on the Rights of Persons with Disabilities
(UNCRPD) in the planning process of the country.
India’s
Eleventh Five-Year Plan (2007-12) recognised that to achieve due
justice, the disabled need the attention of several ministries and
departments. For example, the ministry of rural development has provided
three per cent reservation for disabled people in its welfare schemes.
However,
much more needs to be done. For instance, while school enrolment of
children with disabilities has risen, do we know whether students are
integrated into the classroom and school environment?
These
are the issues we need to ponder as we work towards a just society for
the disabled, one where equity and justice are available to those who
are already at a disadvantage.
- The writer is a noted public health specialist and currently adviser on international health at the ministry of health and family welfare.
Source : Deccan Chronicle , 22nd July 2013
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